What you can expect
Understanding feelings
There are lots of things that can affect how a child or young person is feeling such as:
- Sensory triggers- for example being in a noisy environment, having to wear a tight fitting or loose fitting uniform for school, eating food that the child feels is unpalatable and being in a room with very bright lights can all affect a young person’s mood.
- Particular places- Again, noisy places or places with very bright lights or lots of technology ( Computers / TV’s), crowded places, places with strong smells, unfamiliar places and places that have negative associations for that young person ( where something stressful may have previously occurred).
- Change to usual routines – this can cause stress which can lead to unwanted negative/angry or avoidant behaviours. Young people with Neurodevelopmental profiles respond well in predictable familiar environments, these give order and help the young person to feel an element of control. When routines are changed this can cause anxiety (as the young person does not know what will be expected of them) and stress.
- Talking and listening to others and expressing yourself with language- These can be difficult for young people with Neurodevelopmental profiles, they can struggle to process what others are saying, usually taking a longer time than average and can struggle to get their point across due to difficulties with word finding, eye contact, facial expression and gesture This can lead the young person to become frustrated which can cause unwanted negative behaviours.
- Try not to talk to me or use lots of language with me when I am upset as it is hard for me to follow what you are saying and can make me more frustrated/upset/angry.
- It may help if I feel that you have acknowledged how I am feeling and why even if you do not agree with me e.g. “I understand that you are annoyed”, “I would feel upset too if ……”.
- Map how I am feeling onto my experience of the situation for me, as I may find this difficult to do myself – I may feel angry/upset/anxious but not understand why at the time e.g. “I think you are feeling worried because …”.
- Telling me to “calm down” is often not meaningful to me as it does not help me to understand what I need to do instead.
- Be clear and specific in the way that you talk to me.
- Help me to develop an understanding of the link between physical sensations and the feelings/thoughts they represent as this may be confusing for me e.g. when your heart beats fast it can be because you are feeling worried.
- Help me to build my own ‘tool kit’ of ‘what works’ for me and prompt me to do things that I find calming or distracting as I may not do this myself e.g. go and get my sensory bag, put my head phones on, play with my putty, go on the trampoline etc. Some strategies will work better at home than at school and vice versa.
Connecting emotions to situations – it is easy to assume that your child understands how they are feeling and why, but this may not always be the case. Helping them to connect their emotions to every day situations/experiences can help your child link the words that you use to the feelings that they are experiencing e.g. “I can tell you were really happy about that …”, “I know that you are feeling cross because ……”.
The 5 point scale is a very visual way of working out how much your child is able to identify their feelings and the things that impact on how they feel on a daily basis. The idea is that you start to map situations onto the scale from 1 to 5 with 1 representing things that your child enjoys, makes them feel safe or calm, up to 5 which are the things that send your child into ‘meltdown’, make them really angry or distressed. The experience of doing this is different for each person. Some young people may understand what makes them feel a certain way, others may need a significant amount of help to try and work this out. You need to have a basic understanding of the main emotions happy, sad, angry and worried before you would attempt to use the 5 point scale.
Comic strips are a great visual tool that can be used to help support a young person’s understanding both of how they were feeling and how the other people in the interaction may also have felt. Using stick people, talking bubbles and thinking bubbles can be really helpful in making the process of talking about feelings simpler and easier.
Feelometers are a good visual tool to help show and explain that feelings can go up and they can also come back down. Many young people can find grading within an emotion more difficult to understand, as their experience of feeling an emotion may be more ‘black and white’. For example, they may go from being ‘OK’ to very upset or angry very quickly but not have an understanding of how they got there. Similarly, they may go from being distressed to ‘OK’ equally quickly which might sometimes come as a surprise to those around them.
Talking about feelings
If you do not know how you feel and why, thn using words to try and explain this can feel like an impossible task for some young people and can often then be an additional source of frustration and distress.
Even if you do know how you feel, being able to explain this using words can be very difficult, no matter how eloquent you are in other situations. This can be for a number of reasons:
- Not having the right words to be able to describe how you are feeling.
- Feeling anxious and so finding it harder to communicate
- Feeling overwhelmed because of sensory overload
- Not being able to predict how the other person may respond
Other factors, such as a young person’s language and learning profile will also play a part.
- Try to give me space and time to try to work out how I am feeling before talking to me. It may be that when I have calmed down I am more able to talk to you about how I am feeling and why.
- Make sure we are speaking ‘the same language’ e.g. your understanding of a feeling word and mine, may be different or I might use my own words for specific feelings e.g. “uppydowny” to let you know that I am not Ok, “tinselly” to tell you that I feel excited.
- Sometimes words might be too difficult and I might need you to help me to find other, more visual ways of letting you know how I feel. Understand that just because I can tell you how I feel sometimes, does not mean that I will be able to do it all the time.
- Try to map out things that you know are likely to worry me, in advance, identifying whether anything can be done to reduce my anxiety e.g. “it might be a bit noisy so you could take your head phones”, taking a ‘fiddle toy’ to keep me calm, making the situation predictable to me so I know what to expect.
Feelometers can be a good way of finding out how a young person understands the meaning of different ‘feeling’ words e.g. on a scale on 1-10 with 1 meaning ‘OK’ and 10 being ‘furious’ a young person might say ‘frustrated” but mean “I am really angry”.
Having a shared understanding of the words that the young person uses to express their feelings is really important, so that you know what they mean and can interpret their communication in the right way.
Write down the words that they use and map them onto a feelometer so that you can understand what those words mean to them.
There are alternative and more visual ways of expressing how or what a young person is feeling that do not rely solely on words:
- They could use the 5 point scale “I am a 4” which might mean “I am about to have a meltdown”.
- They could use a colour which lets you know that they have had a good/bad day.
- They could use pictures that show you how they feel, which might help you to unpick what has happened.
It does not have to be spoken – sometimes a young person might be able to write down how they are feeling but not be able to tell you face to face. There are lots of ways that you can assist your young person in doing this, depending on their age, for example:
A worry book where they can write down things about the day that have upset them, for you to look at and talk through with them.
They could text you how they are feeling or use the notes section on their phone.
These are just a few ideas and you will need to work out what works best for your young person.
Use comic strips as a visual way of making sense of feelings in situations. Sometimes this is easier for young people with Neurodevelopmental profiles, as the focus is less about a face to face conversation, (which can increase the communication demands for that young person) and more about simplifying communication on paper. It also enables you to highlight that people may say something that appears to express one emotion, but think/feel a different emotion. This can be very helpful in developing the young person’s insight into the way in which they communicate and why e.g. “It was too noisy and you wanted to get out so you shouted”. Once there is a shared understanding, you can then build on this to develop the use of alternative strategies for next time e.g. “Next time it gets too loud at the table, you can get down and go into the lounge for 5 minutes”.